This is a press release submitted to the Las Vegas Sun. It has not been verified or edited by the Sun.
HPP-Choose Hope Launches Foundation and Website
Published on Tue, Nov 13, 2012 (12:46 p.m.)Contact:
HPP-Choose Hope Launches Foundation and Web Site
LAS VEGAS--Hypophosphatasia (HPP), a rare bone disease known for its impact on bones and teeth and its estimated 1 in 2 infants with infantile onset of the disease leads to death is getting much needed help with the formation of the HPP-Choose Hope foundation.
As a rare bone disease Hypophosphatasia is overlooked when it comes to raising money for research and public awareness. As of today, there are no treatments or cure for this terrible disease, but according to founder David Heaps, “that’s going to change if I have anything to do with it.”
HPP-Choose Hope was started here in Las Vegas after David was diagnosed with HPP in March 2012 after 2 years of searching for answers to his being sick and multiple bone fractures. After seeing a number of doctors and getting no answers David was seen by a local doctor willing to go the extra mile. “It took a Doctor here in Las Vegas to think outside the box and who really wanted to help me”. After a number of blood tests and looking over the past two years of David’s medical records he found a link, low phosphorus. Sending David to UCLA medical center and being hospitalized for 4 days the diagnose was given. “You have Hypophosphatasia, a rare bone disease.”
With the diagnosis of HPP, David and his wife Jennifer started the HPP-Choose Hope foundation. “Our mission of hope is to raise funds for research to find a treatment and cure and to improve the lives of those it affects, while educating Physicians and families about HPP. David went on to say, “We need your help to find the cure for tomorrow’s HPP patients and the treatment for today’s.” You can go to their web site to get more information about Hypophosphatasia and to donate. www.hppchoosehope.org